Saturday, October 17, 2015

Highs and Lows

We were happy after Tuesday's treatment that Chloe felt well, and were cautiously optimistic that she would continue on the upward path. But by Thursday, she had a low grade fever, no energy, and no appetite. Our goal was to keep her hydrated and as comfortable as possible.  We can't give her anything to reduce a fever as it may mask an infection in her port, which is right next to her heart.
So, fever watch began.  If she hits 101.2 degrees, it's off to the ER.  Thankful to report, she stayed below that number for two days and on Friday night, her fever broke!

When Jillian picked the boys up from school on Friday, Mrs. Johnson gave her these sweet notes from Chloe's classmates.  Chloe was happy to receive them and read each one with a smile!

Right after Chloe's diagnosis, a doctor gave us this advice: "Take one day at a time" Really? That's the best he's got? But 4 months into this journey of highs and lows, it's been invaluable advice. Things can change in an instant. If we think about tomorrow, we're going there without the strength and grace that God promises for each new day. One day at a time, and today, she is fever free! She's playing with her brothers and singing silly songs to her beloved Dozer. One day at a time, and today is a good day.


1 comment:

  1. Only a mother's love..I do include all family member's..but there's just something about the love and the caress of a mother especially when a child needs one. Regardless of any situation the caress truly indicates the love of a heart the is genuine. Chloe I may not be a part of your family as far as blood is concerned but I send you lots and lots of hugs from a mommy that also had a child who didn't feel good at times. You are very blessed to have many who love you and are praying for you and to know that the only thing that is required of you is to just hug right back. There are so many hugs big and small just lots and lots of hugs..you are very brave and I can sure see that your heart is so full of love and lots of joy you can see it all over your face and on Dozer's too! Sending the biggest hug I can send without a stamp!!! Love Debbie

    ReplyDelete