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These last few days have been an emotional roller coaster. I'm gunna cut right to the good news though. Today the doctors told us that Chloe's MRD results came back and ALL the CANCER is GONE! She is in remission and they also have put her in the low risk category leukemia. This is a HUGE answer to prayer. That is one of the main things we have been praying for since we found out she has leukemia. God is so great and does hear and answer our prayers. They told us that very few patients fall into the low risk category.
Chloe and our family still have a long and crazy road ahead of us but the 2 year treatment should be a little easier on her with a better prognosis than it would if she were in the high risk category. We cannot express how thankful we are to hear this great news. I hope that through this hard time in our lives that God gets all the glory and His power is displayed through the healing of Chloe and His peace in our lives.
Thank you God! and thank you for all your prayers.
Andrew ( Chloe's Daddy )
Friday, July 31, 2015
Thursday, July 30, 2015
A early trip to the ER
Today started out early with a trip to the ER. I think we left the house around 4am. Chloe was running a fever and with the port in her body and the increased chance of infection any fever is a trip to the hospital. This was kind of a shock because just the day before was probably the best day she has had in a long time. Her attitude was closer to normal and she was having fun playing with her brothers. It made us so happy the see her playing dress up and swinging on her new gorilla gym (As seen on TV). Anyway, they ended up admitting her and we will probably be here for a few days. It really puts our life on hold every time we come here. Chloe is doing ok, but she has still has a fever, cough and some congestion. They said she will have to stay until 48hrs after the fever breaks. As of now they think it could be some kind of virus but we will probably know more soon.
Please pray she gets better and we can go home as soon as it is safe for Chloe. We are finding out soon ( by Monday ) the results of her marrow biopsy, and we pray that the cancer is gone.
Thank you for all you have done for us, and for keeping us in your prayers.
Thank you,
Andrew ( Chloe's Daddy )
2am in the hospital - just woke up to her covered in IV fluid and blood. Her IV hose came apart in her sleep. It was very traumatic having to hold her down to redo her access to the port. She was very upset as you can imagine. Please pray that she doesn't get a infection from having a open IV
Monday, July 27, 2015
End of induction
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http://www.giveforward.com/fundraisers?query=chloe+rott
This week has been pretty tough on our family. It's been stressful for us, life as we knew it is completely changed. Chloe hardly leaves the house and doesn't let Jillian leave her side. The steroids have really done a number on our girl. Physically she has a huge appetite and her tummy bothers her. Most days she has very low energy and just wants to sit around, hardly laughs, and barely talks. It makes me so sad seeing her like this. I just want my daughter back to her normal joyful and fun loving self. Within the next couple days she will be off the steroids and hopefully the side effects will fade away. I can't wait to hear her giggles and to see her smiling more often!
Today the O.C. Register came and will be doing a piece on our family in the next week or so. We also had a birthday party for our doggy, Dozer. We try to think of fun things that she can do at the house. I think today was her best day in a while. She was in a good mood and really enjoyed the dog party.
Please pray for her tomorrow, she will be having her next bone marrow biopsy. It's been a month, and the results will determine the remainder of her treatment. We pray that the chemo has been effective and has completely killed off the cancer. They have to find less than .01% cancer cells, any more than that and it automatically puts her into "high risk". I know that God can heal anything. It is no harder for Him to heal a simple flu than it is low or high risk cancer. We are praying for the best results and the easiest treatment for her. I am very exited for her to be off of the steroids. Pray for her safety during the procedure, good results, and a complete healing. A family from Chloe's school has made some awesome Pray for Chloe Rott bracelets that they are selling for her. Thank you for all the creative ways that you all have helped us, and for all your prayers and encouragement!
Thank you,
Andrew ( Chloe's daddy )
http://www.giveforward.com/fundraisers?query=chloe+rott
Today the O.C. Register came and will be doing a piece on our family in the next week or so. We also had a birthday party for our doggy, Dozer. We try to think of fun things that she can do at the house. I think today was her best day in a while. She was in a good mood and really enjoyed the dog party.
Please pray for her tomorrow, she will be having her next bone marrow biopsy. It's been a month, and the results will determine the remainder of her treatment. We pray that the chemo has been effective and has completely killed off the cancer. They have to find less than .01% cancer cells, any more than that and it automatically puts her into "high risk". I know that God can heal anything. It is no harder for Him to heal a simple flu than it is low or high risk cancer. We are praying for the best results and the easiest treatment for her. I am very exited for her to be off of the steroids. Pray for her safety during the procedure, good results, and a complete healing. A family from Chloe's school has made some awesome Pray for Chloe Rott bracelets that they are selling for her. Thank you for all the creative ways that you all have helped us, and for all your prayers and encouragement!
Thank you,
Andrew ( Chloe's daddy )
Saturday, July 18, 2015
Day 19
Chloe has been hanging tough through all she has going on. A few days ago she got a shorter hair cut. But today was the first day that we noticed her hair starting to fall out. It breaks my heart to think that she will be bald. I do not care how she looks. I just don't want her to feel self conscious about it. I want her to always feel like the beautiful girl that she is.
She has been doing a great job with taking her medicines. It's become a normal part of her day now and we really don't need to bribe her anymore. Her brothers have been helping by taking there meds too ( mango juice in a syringe ). We crush up her pills the same way and give them to her in a little naked juice.
We are always praying for healing. We pray that she will be in remission at the 29 day check! Our whole family needs strength and comfort through this journey. Thank you so much for all your prayers and help! We have been so amazed by everyone.
Thank you,
Andrew ( Chloe's Daddy )
She has been doing a great job with taking her medicines. It's become a normal part of her day now and we really don't need to bribe her anymore. Her brothers have been helping by taking there meds too ( mango juice in a syringe ). We crush up her pills the same way and give them to her in a little naked juice.
We are always praying for healing. We pray that she will be in remission at the 29 day check! Our whole family needs strength and comfort through this journey. Thank you so much for all your prayers and help! We have been so amazed by everyone.
Thank you,
Andrew ( Chloe's Daddy )
Thursday, July 16, 2015
Retroliberty
https://m.youtube.com/watch?v=CR-xydV_As0
The link above is a YouTube video that our besty Aaron at RetroLiberty put up on his channel. If you are following Chloe's story and my posts I'm sure you'll be touched by it. Thanks
The link above is a YouTube video that our besty Aaron at RetroLiberty put up on his channel. If you are following Chloe's story and my posts I'm sure you'll be touched by it. Thanks
Tuesday, July 14, 2015
First trip to OPI
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Today was our first day of OPI. That's the outpatient oncology center at CHOC. As you can imagine Chloe was terrified to go back to the hospital. It was not a easy task to get her there. Trying to convince a little girl hyped up on steroids to go somewhere she hates was... Interesting I think I got bit in the beard at one point. Haha. Seems funny now but not at the time. We had to apply numbing cream on our way to OPI so once we got there they can access her port ( like a IV connection point) without it hurting her. She did Soooo good once we were there! She did not cry at all. She sat on my lap and ate crackers as they took blood samples and gave her the next round of chemo. I'm so thankful that it went so smooth today.
Today was our first day of OPI. That's the outpatient oncology center at CHOC. As you can imagine Chloe was terrified to go back to the hospital. It was not a easy task to get her there. Trying to convince a little girl hyped up on steroids to go somewhere she hates was... Interesting I think I got bit in the beard at one point. Haha. Seems funny now but not at the time. We had to apply numbing cream on our way to OPI so once we got there they can access her port ( like a IV connection point) without it hurting her. She did Soooo good once we were there! She did not cry at all. She sat on my lap and ate crackers as they took blood samples and gave her the next round of chemo. I'm so thankful that it went so smooth today.
At home it has been a difficult change of life on everyone. I can tell that Caden is having a hard time with everything. He is worried about Chloe and I'm sure doesn't like the changes we've had to make. Chloe has been having the classic side effects of the steroids. She has been very moody and eats everything in sight. She has put on a few lbs so far, which should come off when she is off the roids. Jillian has started using oils in the air that are supposed to help. She has talked to other parents that have gone through the similar situations and swear that the oils really helped their kids with all the side effects of these harsh drugs.
Please continue to keep us in your prayers. Thanks for your prayers and support. Our family, friends and even complete strangers have been so generous and reached out to us in so many ways We are so greatful for everything
Thank you and God bless,
Andrew (Chloe's Daddy)
Friday, July 10, 2015
Melted away !
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It's been so nice being home ! I've never appreciated sleeping in my own bed so much. I think Chloe would agree too. The bumps that were on the side of her face have already melted away! It is seriously so awesome! The doctors said they would shrink away but we are just amazed how fast they disappeared. We are hoping that the cancer we can't see it going away too! She has been eating Soooo much! I guess the steroids are kicking in. She will eat all evening long if we let her. Jillian and I just look at each other in amazement as she downs food like never before. Chloe is usually a light eater. Chloe and Jillian are inseparable right now. It reminds us of when you first bring a new born home and you are so worried that they will get sick and if you put them down the baby will get all fussy. Chloe is doing surprisingly well and I think that it is a answer to the many prayers. We are comforted knowing that so many are keeping us in there prayers. Thank you for all your prayers and the creative ways you have helped and supported our family!
Thank you,
Andrew ( Chloe's Daddy )
It's been so nice being home ! I've never appreciated sleeping in my own bed so much. I think Chloe would agree too. The bumps that were on the side of her face have already melted away! It is seriously so awesome! The doctors said they would shrink away but we are just amazed how fast they disappeared. We are hoping that the cancer we can't see it going away too! She has been eating Soooo much! I guess the steroids are kicking in. She will eat all evening long if we let her. Jillian and I just look at each other in amazement as she downs food like never before. Chloe is usually a light eater. Chloe and Jillian are inseparable right now. It reminds us of when you first bring a new born home and you are so worried that they will get sick and if you put them down the baby will get all fussy. Chloe is doing surprisingly well and I think that it is a answer to the many prayers. We are comforted knowing that so many are keeping us in there prayers. Thank you for all your prayers and the creative ways you have helped and supported our family!
Thank you,
Andrew ( Chloe's Daddy )
Wednesday, July 8, 2015
There's no place like home
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Today could not have come any sooner. We finally got to come home!!! Chloe was so excited to get back home. She could not wait to get unhooked from her IV , get out of the hospital and go see her doggy Dozer. I can't wait to get a good night sleep without getting woke up all night from nurses coming in and checking vitals. I also will not miss the crying and coughing that we heard all night long from the rooms next to us. If you have to be in the hospital CHOC is a good place to be, But I will be happy if we don't have to stay again. I am also thankful to live in a place that has great facilities that can treat illnesses like this!
The doctors said that Chloe's levels are steady and should be ok until her next appointment on Tuesday. At that time they will recheck her levels again and give her the next round of chemo. Thankfully she had a good day today, with minimal pain. Maybe it helped knowing we were going home.
We are praying that she doesn't get any colds or infections. The house has been super cleaned and we have implemented some serious hand washing and sanitizing routines. For example; shoes come off at the front door, and we keep a bottle right by the door so you have to sanitize your hands right when you come in. We enjoyed our meal from the meal train tonight ! It was such a blessing when we have so much going on. Thanks for all the prayers and support! We are blown away by your kindness and generosity. Please pray for Chloe and our family as we enter this new part of our lives as we battle these cancer cells.
Thank you,
Andrew ( Chloe's Daddy )
Today could not have come any sooner. We finally got to come home!!! Chloe was so excited to get back home. She could not wait to get unhooked from her IV , get out of the hospital and go see her doggy Dozer. I can't wait to get a good night sleep without getting woke up all night from nurses coming in and checking vitals. I also will not miss the crying and coughing that we heard all night long from the rooms next to us. If you have to be in the hospital CHOC is a good place to be, But I will be happy if we don't have to stay again. I am also thankful to live in a place that has great facilities that can treat illnesses like this!
The doctors said that Chloe's levels are steady and should be ok until her next appointment on Tuesday. At that time they will recheck her levels again and give her the next round of chemo. Thankfully she had a good day today, with minimal pain. Maybe it helped knowing we were going home.
We are praying that she doesn't get any colds or infections. The house has been super cleaned and we have implemented some serious hand washing and sanitizing routines. For example; shoes come off at the front door, and we keep a bottle right by the door so you have to sanitize your hands right when you come in. We enjoyed our meal from the meal train tonight ! It was such a blessing when we have so much going on. Thanks for all the prayers and support! We are blown away by your kindness and generosity. Please pray for Chloe and our family as we enter this new part of our lives as we battle these cancer cells.
Thank you,
Andrew ( Chloe's Daddy )
Monday, July 6, 2015
Genetics results
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Today we got the results for the genetics test that they took when she was first diagnosed. There are a number of things that they take into account when they decide if she will be in low, normal or high risk. This also determines the corse of treatment and how harsh the chemo will be. The genetics is just one factor of many. We have been praying that Chloe's genetics would come back good or low risk category. God answered our prayers! We are so thankful! They have not put her in a low or high risk yet but that is one less thing that we need to worry about in the process.
Tomorrow Chloe has another lumbar puncture. We are praying that the chemo is working well. Please pray that she is a "low risk" patient and she has a complete recovery with not one cancer cell left in her body. Thank you for all your prayers and support!
-Andrew ( Chloe's Daddy )
Today we got the results for the genetics test that they took when she was first diagnosed. There are a number of things that they take into account when they decide if she will be in low, normal or high risk. This also determines the corse of treatment and how harsh the chemo will be. The genetics is just one factor of many. We have been praying that Chloe's genetics would come back good or low risk category. God answered our prayers! We are so thankful! They have not put her in a low or high risk yet but that is one less thing that we need to worry about in the process.
Tomorrow Chloe has another lumbar puncture. We are praying that the chemo is working well. Please pray that she is a "low risk" patient and she has a complete recovery with not one cancer cell left in her body. Thank you for all your prayers and support!
-Andrew ( Chloe's Daddy )
Sunday, July 5, 2015
Romans 8:28
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We've been in the hospital for over a week now. It's been the hardest week I have ever been through! I am in a much better place now than I was the first few days after Chloe was diagnosed with leukemia. I'm sure Jillian would say the same. The first few days were so hard. We have spent hours and hours praying and crying and I know all of your prayers have been a huge help for us. Chloe and her family are still adjusting to our new life. I feel like I have come out of the fog and can function again. We know that God will use this situation for his Glory. We look forward to her healing and to see what God has in store for Chloe's life and our family!
Romans 8:28 And we know that all things work together for good to those who love God, to those who are the called according to His purpose.
This morning was the fastest she has taken her meds ( about 5 min ) but on the other hand it took her 2 hours to get them down last night. I have not tried them but judging by her reactions they must be disgusting! She has to take them 2 times a day. Sleep has been rough, anyone who has stayed in a hospital knows about getting woke up every 2-4 hours, so were all pretty tired. Chloe had some mouth and stomach pain this morning but was great the rest of the day. She had a very happy day over all and loved playing with Caden this afternoon. We really appreciate every good moment, and just love when she is happy and comfortable. This has made us so thankful for small things that we probably would not have even noticed before.
Please continue to pray for her healing, peace, strength and that the first month is successful in putting the cancer into remission! We are also praying that she has no side affects from the chemo and meds. She has been having some stomach and jaw pains. We are asking God to keep her safe from new illness and infections
We are overwhelmed by the support, generosity and prayers that we have received from so many. We cannot thank you enough!
Thank you ,
Andrew (Chloe's Daddy)
We've been in the hospital for over a week now. It's been the hardest week I have ever been through! I am in a much better place now than I was the first few days after Chloe was diagnosed with leukemia. I'm sure Jillian would say the same. The first few days were so hard. We have spent hours and hours praying and crying and I know all of your prayers have been a huge help for us. Chloe and her family are still adjusting to our new life. I feel like I have come out of the fog and can function again. We know that God will use this situation for his Glory. We look forward to her healing and to see what God has in store for Chloe's life and our family!
Romans 8:28 And we know that all things work together for good to those who love God, to those who are the called according to His purpose.
This morning was the fastest she has taken her meds ( about 5 min ) but on the other hand it took her 2 hours to get them down last night. I have not tried them but judging by her reactions they must be disgusting! She has to take them 2 times a day. Sleep has been rough, anyone who has stayed in a hospital knows about getting woke up every 2-4 hours, so were all pretty tired. Chloe had some mouth and stomach pain this morning but was great the rest of the day. She had a very happy day over all and loved playing with Caden this afternoon. We really appreciate every good moment, and just love when she is happy and comfortable. This has made us so thankful for small things that we probably would not have even noticed before.
Please continue to pray for her healing, peace, strength and that the first month is successful in putting the cancer into remission! We are also praying that she has no side affects from the chemo and meds. She has been having some stomach and jaw pains. We are asking God to keep her safe from new illness and infections
We are overwhelmed by the support, generosity and prayers that we have received from so many. We cannot thank you enough!
Thank you ,
Andrew (Chloe's Daddy)
To provide meals for the family:
https://www.mealtrain.com/trains/k42rzz
Friday, July 3, 2015
She gets to keep her doggy!
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Chloe had another day of chemotherapy. We were a little nervous for the first 1/2 hr because if there is going to be a reaction to it that's usually when it will happen. Thankfully God answered our prayers and the treatment was uneventful. She was able to watch her American Girl movie as it was happening.
She has been on steroids of a few days now and the mood swings are starting to kick in. She goes from sweet to spicy and then back to sweet again in a flash. It can be frustrating but also slightly amusing at times. She went from growling at us in anger to painting a I Love You picture in seconds. Chloe's jaw was sore this morning from one of the meds, but a little pain killer helped her feel better and then the rest of the day she was doing well.
Jillian and I had a class on care at home and how important it is to keep Chloe from getting sick. Her immune system is essentially completely knocked out, so we have to take every precaution to keep her from any new germs. We know a lot of people want to come see her but for her own safety we have to be very careful about her contact with people. We are going into germ lockdown. Chloe was happy that she gets to keep Dozer her "favorite doggy in the world" because we didn't know if we would have to get rid of him. They said that we can keep the pets we have but don't bring her around any new animals. I guess her new bunny will have to wait.
Please continue to pray for her healing, peace, strength and that the first month is successful in putting the cancer into remission. We are also praying that she has few ( or no )side affects from the chemo and meds. She has also been having some stomach pains. We also are praying that they don't move another patient into our room. It would make it so much harder for rest, cleanliness and overall enjoyment of our stay at the hospital.
We are overwhelmed by the support, generosity and prayers that we have received from around the world! We cannot thank everyone enough.
- Andrew ( Chloe's daddy )
Chloe had another day of chemotherapy. We were a little nervous for the first 1/2 hr because if there is going to be a reaction to it that's usually when it will happen. Thankfully God answered our prayers and the treatment was uneventful. She was able to watch her American Girl movie as it was happening.
She has been on steroids of a few days now and the mood swings are starting to kick in. She goes from sweet to spicy and then back to sweet again in a flash. It can be frustrating but also slightly amusing at times. She went from growling at us in anger to painting a I Love You picture in seconds. Chloe's jaw was sore this morning from one of the meds, but a little pain killer helped her feel better and then the rest of the day she was doing well.
Jillian and I had a class on care at home and how important it is to keep Chloe from getting sick. Her immune system is essentially completely knocked out, so we have to take every precaution to keep her from any new germs. We know a lot of people want to come see her but for her own safety we have to be very careful about her contact with people. We are going into germ lockdown. Chloe was happy that she gets to keep Dozer her "favorite doggy in the world" because we didn't know if we would have to get rid of him. They said that we can keep the pets we have but don't bring her around any new animals. I guess her new bunny will have to wait.
Please continue to pray for her healing, peace, strength and that the first month is successful in putting the cancer into remission. We are also praying that she has few ( or no )side affects from the chemo and meds. She has also been having some stomach pains. We also are praying that they don't move another patient into our room. It would make it so much harder for rest, cleanliness and overall enjoyment of our stay at the hospital.
We are overwhelmed by the support, generosity and prayers that we have received from around the world! We cannot thank everyone enough.
- Andrew ( Chloe's daddy )
To provide meals for the family:
https://www.mealtrain.com/trains/k42rzz
Thursday, July 2, 2015
Life at CHOC
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We thank God that Chloe's blood transfusion went smoothly ! She had it at night and was able to sleep through most of it. She has been taking all the medicines like a champ (with a little help from candies and toys ) but we are happy that she is taking them. The medicines are the key to the first months success. The doctors say that this first month is the most important. They call it the "Induction phase" the goal is to get the cancer into remission Once in remission the cancer is completely wiped out and they have a 2 year plan that should keep it from coming back.
Chloe has been having a rough day of stomach pains. The doctors say that is a normal part of the treatment but We are praying that her stomach feels better soon. Even through the pain she had fun with her brothers Caden and Kevin who got to come visit. She loves them so much.
Tomorrow is another day of chemo. They are introducing a new one that is supposed to have a higher chance of adverse reactions. We are hopeful and praying that her body can take it without any issues.
We are overwhelmed by the support and generosity that we have received and cannot thank everyone enough.
- Andrew ( Chloe's daddy)
We thank God that Chloe's blood transfusion went smoothly ! She had it at night and was able to sleep through most of it. She has been taking all the medicines like a champ (with a little help from candies and toys ) but we are happy that she is taking them. The medicines are the key to the first months success. The doctors say that this first month is the most important. They call it the "Induction phase" the goal is to get the cancer into remission Once in remission the cancer is completely wiped out and they have a 2 year plan that should keep it from coming back.
Chloe has been having a rough day of stomach pains. The doctors say that is a normal part of the treatment but We are praying that her stomach feels better soon. Even through the pain she had fun with her brothers Caden and Kevin who got to come visit. She loves them so much.
Tomorrow is another day of chemo. They are introducing a new one that is supposed to have a higher chance of adverse reactions. We are hopeful and praying that her body can take it without any issues.
We are overwhelmed by the support and generosity that we have received and cannot thank everyone enough.
- Andrew ( Chloe's daddy)
To provide meals for the family:
https://www.mealtrain.com/trains/k42rzz
Wednesday, July 1, 2015
Good day for Chloe
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Today has been a good day for Chloe. She has had minimal side effects from the chemo she had yesterday and is learning to take all of her new medications like a champ. We got to go outside for a little bit and we also got to go to the Ryan Seacrest radio station! Thank you everyone for all of your prayers and support, we really can feel Gods love through you.
He will cover you with his feathers . He will shelter you with his wings. His faithful promises are your armor and protection in times of trouble. Do not be afraid at night nor the arrows that fly at you in the day.
Psalms 91:4-5
To provide meals for the family:
https://www.mealtrain.com/trains/k42rzz
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